Tag: decoding treasure

Melatonin Night 1 Treasure got up this morning…

Melatonin Night 1.
Treasure got up this morning at 11pm last night.
After sanding drywall all day, I gave in at 4am, Gave Her a Chocolate Candy bar and she was OUT IN 5 MINUTES.
Of course now she’ll be banging her head and not making eye contact all day, but our house isn’t safe for her right now and I was about to pass out.
Treasure 1 – Melatonin ZIP!!!

Keira’s old school schedule was ½ days in…

UPDATED DAILY
Keira’s old school schedule was ½ days in the afternoon, with therapies in Portland in the morning. We spend most mornings in the truck and some days Keira had to eat lunch in the truck between therapy and preschool in order to get her everywhere on time. It was terrible, very hectic. Summer has been much easier with preschool all inclusive.
June 13 Keira had temp of 100. Slept most of the day.
June 14 No temp. Slept a little during the day. Up all night – that’s normal.
June 15 Normal, but urinated a little in her pants (like leakage)
June 16 Acted normal, but had 3 small accidents. When I told her to go sit on the potty she did and urinated the rest.
June 17 see June 16
June 18 Saw DR checked out ok. Looked like UTI. Possibly HFMD. Started Anti biotic – no accidents
June 19 no accidents
M June 20 no accidents. Everything seemed fine started full day preschool. Gave Keira her UTI meds before school, Doctors office called me after to tell me no UTI – we stopped meds.
T June 21 around 2am Keira woke up and vomited. Went back to sleep and woke up the next morning with a ton of energy, figured she ate something that didn’t agree wit her – Sent her to school.
W June 22 Keira woke up gagging and vomiting 1amish, but still has energy to run around and seems like she feels ok.
TH June 23 Vomited around midnight, but got up for school happy and bubbly – went to school – assumed it’s because of the change in schedule.
F June 24 Again vomited around midnight. Wanted to give her the weekend to make sure it just wasn’t school related.
Sat June 25 2am vomiting – again that morning she was fine. A little tired, but ran around the house, played like normal. Ate less and chewed on things less.
S June 26 Vomited 1 am. Tired during the day, but active. Kept the day light.
M June 27 Keira’s birthday. Vomited 1 am. Great day at school, tired at birthday party.
T June 28 Vomited 1am, acted tired, eating and drinking less – urinating less. Picked Keira up at school (where I was told she had a great day – lots of talking and communicating) Went to see DR Harper. Another UTI test.
W June 29 12am Violent vomiting. Called doctors office, explained the vomiting, that Keira had gone limp and couldn’t hold her head up – Jenna refused to see Keira. I was told “the ‘covering’ Doctor who saw Treasure yesterday isn’t in today so the NP doesn’t want to do anything until Keira sees DR Harper tomorrow – if it happens tonight take her to the ER. ”
It wasn’t a matter of IF but WHEN.
I called back and told the nurse that allowing my poor baby to suffer through another night of agony because Jenna wasn’t willing to see my daughter was UNACCEPTABLE. I would NOT allow her to suffer through another night after DR Harper had already told me that if her urine was clean he was going to put her meds for acid reflux. I was only calling in to see what and how much I should give her.
We saw Dr MacDonald – she started the MRI process. Started Reflux meds.
Th June 30 Low and behold – first night no vomiting.
F July 1 Vomited 1 am – but not nearly as bad – went to school
Sat July 2 No vomiting – went to family 4th party. Keira played in the water, but she wasn’t herself. She wanted to be held all day – which we did. She wasn’t her normal bundle of energy. No trying to escape to the water or running away from us. She stayed close and didn’t eat much.
S July 3 Vomited 1am and again at 1pm. At 1pm she was singing in the truck, the singing stopped, I heard vomiting looked in the rear view mirror to see Keira’s head hanging down, appeared unconscious, and vomiting. She came to quickly and said “Yuk” I gave her a napkin and she started to clean herself up. We were only 2 minutes from home and since I couldn’t do anything I got us home as fast as possible. Took a trip to the ER. Had a CT scan and a ton of blood work to find nothing wrong with her.
M July 4 No vomiting. Finding it hard to get meds into Keira, but getting at least a half dose in twice a day.
T July 5 Things are looking up – no vomiting. Went to school, very happy, very bubbly, used a lot of language in school. YAY
W July 6 Vomited 5 am. Went back to bed. Got up and was fine. Grabbed her backpack and headed out the door for school before we were ready to go.
School called around 2 to tell me Keira wasn’t herself. She couldn’t be calmed and finally fell sleep in their arms. When she got home she wasn’t herself. Keira wanted to go to the pool and I could tell she wanted to play, but she just sat on my lap and laid her head on my shoulder in the pool. The evening was about the same. She whimpered most of the night, going from bed to playing to back to bed – moving very cautiously, not her usually bull in a China shop rampage through the house. Keira picked at everything returning to bed or the couch after every two bites. She put herself to bed around 8:30 whimpering, very sad. Daddy laid down with her until she was asleep. I have her a little Tylenol I don’t know if it helped, but she did sleep through the night.
Th July 7 Didn’t vomit in the night. Got up slowly and cautiously this morning. Did eat dry cereal and was in a good mood, but not her normal mood. No running about and she hasn’t jumped on the couch for 2 weeks. Since she was eating more and happy, I brought her to school. Making the decision to bring her to school is getting harder every day. She desperately needs the therapy she receives in school and it’s making a huge difference, I hope being at school is a good distraction from how she’s feeling on the inside. I’m praying it’s not wearing her out more.
F July 8 Didn’t vomit – night 2! Thank GOD! However, I’m pretty sure the doctors think I’m wacko! She also had a wonderful day at school for the first time in ….. I don’t know …. maybe weeks! To bad she was only there 1/2 the day.

Poor Treasure just isn’t feel like herself She…

Poor Treasure just isn’t feel like herself.
She was upset at school this afternoon and they couldn’t make her happy. Her teacher said she finally just picked her up and shortly Treas was asleep.
She’s hardly touching her food, she eats a little here and a little there.
Treasure wants to be held almost all the time, which she’s always been snuggley but never this snuggley. She gets up, walks around, plays a little, then goes back to bed. She lays down for a while, then she’s up, walks around, plays a little and back to bed. Around and around it goes.

ER Hell

Sunday, July 3rd 2011

Oh Joy! The ER.
Treasure had a vomiting spell at 1am – I should say 2 vomiting spells. Meds are NOT doing any good.
In the morning she woke up and just wasn’t herself.
I finally gave in and went out to get her Wendy’s french fries – she’s had Wendy’s fries during the day both nights she hasn’t vomited – I was desperate, but I was too late.
I handed her a few fries on the way home, she just ripped them up, she didn’t feel like eating.
Then as we were passing the high school I heard vomiting, I looked in the rear view to find Treasure slumped over vomiting, eye’s closed, unconscious – still vomiting.
I yelled her name – nothing.
I swerved the truck to the side of the road, Treasures head rolled to the side and her eye’s half opened. I was about 2 minutes from home and I couldn’t do anything there so I hit the gas, ran a light -it wasn’t solid …yet… and got us home as fast as possible. Treas started to come to before we got home and said “ICK” lol I handed her a towel and told her we’d be home very soon.
I gave her a bath, she was hardly able to keep herself upright, I laid her on the couch were she took a little nap before we headed into the ER – that was hell.
They got us in there quick enough – about 1/2 hour – I was thankful, the ER was PACKED!
They started an IV, took a ton of blood, did a CT scan, then we waited FOREVER and finally they came in to tell us – “We can’t find anything wrong.”
Well, I guess that’s good news since the only things they were looking for were life threatening.
Today Treasure eat constantly – I’m hoping for the best – expecting the worse. *sigh*

Small French Fries Small French Fries Potatoes Vegetable…

Small French Fries

Small French Fries
Potatoes, Vegetable Oil (contains one or more of the following oils: canola, soybean, cottonseed, sunflower, corn), Dextrose, Sodium Acid Pyrophosphate (to maintain natural color). Cooked in Vegetable Oil (soybean oil, corn oil, cottonseed oil, hydrogenated soybean oil, natural flavor [vegetable], citric acid [preservative], dimethylpolysiloxane [anti-foaming agent]). Cooked in the same oil as menu items that contain Wheat, Egg, Milk, and Fish (where available). Seasoned with Sea Salt.
Ketchup
Tomato Concentrate (made from red ripe tomatoes), Distilled Vinegar, High Fructose Corn Syrup, Corn Syrup, Salt, Spice, Onion Powder, Natural Flavoring.
A Word about Trans Fats
In August 2006, Wendy’s switched to an in-store cooking oil containing 0 grams of trans fats which significantly reduced the amount of trans fats in its French fries. This meant Wendy’s was not adding trans fats during the cooking process in our restaurant kitchens.
Additionally, Wendy’s directed its French fry suppliers to create a blend of oils with 0 grams trans fat to be used in the plants that prepare Wendy’s French fries. By 2008 all of Wendy’s French fry suppliers were using an oil blend containing 0 grams of trans fat in processing Wendy’s French fries.
As with all of Wendy’s food products, French fries are individually portioned and variations will exist from restaurant to restaurant. So that our customers can have confidence in our nutritional information, Wendy’s follows a rigorous testing process that follows the recommended procedures of the U.S. Food and Drug Administration (FDA). Samples are taken from Wendy’s suppliers across the country and sent to independent laboratories for analysis.
Wendy’s is proud of its legacy as an innovator in the restaurant industry and our efforts to remove trans fats from our food products are a continuation of that tradition.

H. Pylori

H. Pylori
* starts between meals or during the night
Keira always wants to eat. She’ll be playing or reading with us, jump up, go to the fridge and demand to eat something or drink. This isn’t new, but I never thought it was a symptom of something else.
* briefly stops if you eat or take antacids
Keira has terrible sleeping patterns. But the one constant is that she would wake up crying and go to the table and sit there until I gave her something to eat and drink. She will wrap her hands around her stomach, which I thought she was cold, but now I’m second guessing myself, maybe she was hurting. After she had a little snack she’d usually go back to bed, sometimes she’d just about fall asleep in her chair. We took Keira off milk about 2 months ago and I wonder if that was coating her stomach. I thought I was creating a bad habit by giving her a snack every night, now I’m thinking the food was calming her tummy. If I didn’t give her a snack she’s scream for hours on end – probably in pain – very glad I gave in.
* lasts for minutes to hours
Don’t know how long it lasts she’s non-verbal.
* comes and goes for several days or weeks
It comes and goes.
* weight loss
She has had weight loss now, she’s been vomiting for nights.
* poor appetite
Her appetite has gone down hill. I think she’s eating just enough to make herself feel better. She keeps going to the fridge getting stuff out, but only takes a few bites.
* bloating
I don’t know how I’d know this
* burping
Bad burps lately
* vomiting
Only at night
* feeling sick to your stomach
Don’t know. She must be feeling sick some of the time because she is going to her bed from time to time and just laying there.
* sudden sharp stomach pain that doesn’t go away
I don’t know
* black or bloody stools
Keira does eat a lot of blue berries but recently her stool has looked odd. It’s brown swirled with dark black. I figured it was just the blueberries, but now I’m questioning myself.
* bloody vomit or vomit that looks like coffee grounds
I’ve been wondering if her vomit had blood in it, since she eats blueberries, tomatoes I figured the color of the vomit was probably from what she’s been eating. Sometimes it’s fluorescent pink – other times it looks like a dark purple almost black thick goo. I figured the different color and thickness may have something to do with how long the food had been in her stomach, but now I’m afraid there could be blood. Today we took her off the fruit because of the acid – she’s eating nothing healthy except carrots.
The bacteria most likely spread from person to person through the fecal-oral route (when infected fecal matter comes in contact with hands, food or water) or the oral-oral route (when infected saliva or vomit comes in contact with hands, food or water).
Keira puts everything in her mouth.
The vomiting started when we took her off the anti biotic that Dr MacDonald put her on back on the 18th because they thought she had a UTI. She had 4 doses, she had the last dose on Monday morning, they called me, told me she didn’t have a UTI and to stop the anti biotic, that night around midnight she started vomiting.
Keira also started this spitting thing after we took her off milk. I think the milk was coating her tummy and now that she doesn’t have that I bet she’s trying to spit out that taste.
http://digestive.niddk.nih.gov/ddiseases/pubs/pepticulcers_ez/
http://www.idph.state.il.us/public/hb/hbhylori.htm

It sucks when your Doctor is on vacation – a bit of a Problem with Martins Point Health Care.

Our Primary Care Physician is the most beautiful caring woman you’ll ever meet. And she has this nurse who is equally as beautiful, kind and patient. The nurse is no nonsense, where our physician will come in blowing bubbles in a kids face – they are the perfect pair and we couldn’t love them more.
This week our physician is on vacation, a well deserved vacation. How do I know this? Because as much as we lover her – so does everyone else! She is impossible to see, you must schedule your illness 3 months in advance. So unless you are critical, you will end up seeing one of her associates.
AND THAT IS WHERE THE PROBLEM BEGAN!
The first associate is a male doctor who is a bit of an old lady. I love him, he worries about everything. You always feel as if he’s just as nervous about whatever it is as you are, but he has the know how to get stuff done. He’s Richard Kind in every bumbling role – he knows just who you should see and talk to even thou he appears somewhat fumbling.
Then there is the Nurse Practitioner – she likes to “wait and see.”
This is where my story begins.

My newly 4 year old Autistic daughter started vomiting every night, just days before her 4th birthday. She has NO OTHER SYMPTOMS. She wakes up some time after 12:30am, vomits almost the complete contents of her stomach, falls back to sleep, only to awake a half hour later to empty her remaining stomach content. Then my little Treasure will fall back to sleep, wake up in the morning fully rested and ready for preschool – LIKE NOTHING EVER HAPPENED! Night after night!
At first I thought it was a change in her schedule, but it just kept getting worse. Earlier that month we thought she’d had a UTI, but that tested negative and now this.
I called the office to be informed that our Primary was on vacation, but we could see either the NP (Nurse Practitioner) OR DR Fumbling. Knowing the NP’s “wait and see” attitude, I chose wisely – Dr Fumbling.
We went in, saw the nurse, saw the doctor, he ordered another urine – it amazes me how a UTI causes babies, toddlers and old folks to move into the crazy zone to such an extreme. The doctor told me “I want to run another urine to make sure it‘s not a UTI, before I put her on medication. If it‘s not a UTI, it‘s probably Acid Reflux.” Ok, we had a plan, fingers crossed, get the pee, get the pee back to the lab, and pray for a better night.
We did not have a better night. We had the absolute worst night ever. My poor little Treasure vomited until she went completely limp. She finally stopped long enough where I felt I could change out of vomit ridden PJ into some kind of acceptable clothing to rush her into the ER.
I left Treasure on the couch, ran into the bed room and by the time I had dug yesterdays bra out from the hamper I could hear her giggling on the couch. It was over. I couldn’t bring her to the ER now, they’d think me nuts!
I walked slowly out to the living room expecting to see nothing short of the Exodus and there sat my little girl playing with her toes. Treasure is autistic so she doesn’t communicate much even thou she talks almost obsessively at home. With a BIG old smile on her face she started singing “If you‘re happy and you know it”
I pulled the second strap over my shoulder, picked up my daughter and brought her back to bed, both of us laughing and giggling, with big hugs and even a good night kiss. I left her in room to play/sleep/giggle (that‘s another story) and I went back to bed. She sang for 3 hours before drifting back off. The next morning up she was just as chipper and energetic as ever.
I brought her to school, dropped the ’sample’ off at the lab, gave them what I felt was an adequate amount of time to look at said sample before calling the office to see if they found anything floating in her pee that would explain what the hell cause the demon possession I witnessed in the wee hours of the morning.
I explained to the ‘other’ nurse, that my daughter’s one symptom had become dramatically worse. Vomiting so violently that she had gone limp, unable to even keep her head up.
The ’other’ nurse spoke with the NP and called me back and I was told this: “the ‘covering’ Doctor who saw Treasure yesterday isn’t in today so the NP doesn’t want to do anything until Treasure sees DR Fumbling tomorrow – if it happens tonight take her to the ER. ” {Oh Yeah? LIKE HELL!}

{sarcasm} The next time I call, I’m going to inform the ‘other’ nurse, that before she relays anything stupid, that I am an Orange Belt and breaking boards with my bare feet is my specialty – imagine what I could do to someone’s ass with my sandals on 🙂 SMILEYS!! {/sarcasm}
But I digress. I didn’t know if I was going to Cry or Kick something. It wasn’t a matter of IF but WHEN.
I called back and told the ‘other’ nurse that allowing my poor baby to suffer through another night of agony because the NP wasn’t willing to see my daughter was UNACCEPTABLE. I would NOT allow her to suffer through another night after DR Fumbling had already told me that if her urine was clean he was going to put her meds for acid reflux. I was only calling in to see what and how much I should give her.
The ‘other’ nurse felt she had a sound argument when she informed me that “The medication probably wouldn‘t work immediately anyway” To me that sounded like a reason to start pumping them into her sooner than later.
I told the ‘other’ nurse that there is an entire wing of pediatrician on the other end of the build and that they must schedule there patients differently because there is always someone available and low and behold there was!
The Pediatrician we saw was amazing – she set up blood work, scheduled an MRI, and explained the possibilities – many of them are not pleasant. We’re hoping it’s simple reflux, but there is a possibility of seizures. As much as we hate to hear what she has to say, it’s a relief that someone is actually doing something.
It kills me to remove Treasure from our primaries care, but with Treasure’s inability to communicate I need someone who I can see on demand in cases like this one. I can’t gamble that my baby may have to see the “Suffer through it – Wait and See” Nurse Practitioner.
I called to have Treasure transferred and I already feel a great relief, I just hope our Primary will forgive me!

Facebook Posts Today I showed remarkable restrain in…

Facebook Posts:
Today I showed remarkable restrain in not using my new found kicking skills to put a nurse practitioner through a wall.
My Statement: My daughter was vomiting so violently she went limp.
Her response: the Doctor who saw her yesterday isn’t in today so we’re not going to do anything until she sees him tomorrow – if it happens tonight take her to the ER.
Lot’s of information from the wonderful doctor who saw us.
Some good, some scary, but far less scary now we’re doing something.
Blood work done – got to see the new parking garage at MMC – the ceiling is a good 3 inches higher than my truck! That was frightening.
MRI in the process of being scheduled. They are also finding us a neurologist (spelling). We have meds (well most of them anyway) IN Keira.
I have NO IDEA why all this time they’ve been looking at her PEE!
This doctor is on the ball – missing our primary, but she’ll be back from vacation soon.
They still don’t know what’s going on, it could be anything, so they are checking everything. No healthy 4 year old she wake up every night and vomit until she practically passes out – then be perfectly fine the other 22 hours of the day.

Far to tired to type out the day…

Far to tired to type out the day. This is the letter I sent to Keira’s teachers:
Oh what a day!
Last night Keira had the most violent attack of vomiting I’ve ever seen. She went completely limp. I was about to take her to the ER when she started to perk up and then spent 3 hours playing in her room and keeping us all up with her singing. {I wouldn‘t complain if you removed “if you‘re happy and you know it” from your class song collection}
So after dropping Keira off at school, I took her urine in for yet another analyses, gave them a little time to look at it, then called.
The short story is, after explaining to the nurse that my daughter was vomiting so violently she went limp. I was told that “the ‘covering’ Doctor who saw Keira yesterday isn’t in today so we’re not going to do anything until she sees him tomorrow – if it happens tonight take her to the ER. ”
The next time I call, I’m going to inform the nurse, that before she said anything stupid, that I am an Orange Belt and breaking boards with my bare feet is my specialty – imagine what I could do to her ass with my sandals on.
But I digress. I pitched a fit, told them I was coming in and they very quickly set me up with another doctor. I can’t wait until our doctor gets back from vacation.
The doctor we saw today was amazing – she set up blood work for Keira, scheduled an MRI, and explained the possibilities – many of them are not pleasant. We’re hoping it’s simple reflux, but there is a possibility of seizures.
As much as we hate to hear it, it’s a relief that someone is actually doing something.
*sigh*
I’m off to give my brave little trooper a tubby.
Talk soon,